Friday, October 31, 2008
Monday, October 20, 2008
Stroke Walk 2008 BIG STEPS FOR BABY STROKES
So the walk was yesterday and it was a great day. It started off a little cold but ended up being a nice day for a walk. We had tons of people come out and support our team and as you can see to the right how much our team raised.
Sean got a red cap for being a survivor and so did my dad. Sean also signed the survivor wall it was so precious.
I am so proud of everyone involved and I know all of us will truly make a difference. Next year we get our own tent how awesome is that. I hope next year to even raise more money and more awareness.
Next year hopefully we will be able to get some corporate sponsors, and pediatric stroke awareness pamphlets too.
Our team shirts looked awesome as well. I hope to make more awareness through out this next year and to get more people involved and on our team to help make a difference. It just sucks because when I send info the media or newspaper NO ONE responds. How do you get them to respond?
I know there are many people out there who care and right stories about our precious little ones so that is what matters as long as there is awareness and people are listening it doesn't matter if it is my story or someone elses. I just want to make sure NO ONE else has to go through what we and many others are and have gone through.
Again THANK YOU to all of you who sponsered Sean and TEAM BIG STEPS FOR BABY STROKES.
Thursday, October 16, 2008
An emotional meaning about the name Sean
So I looked up the meaning of Sean online today out of curiosity what it says the meaning was and as I read what the meaning was I started to tear up.
As you read it you may very well especially if you know our story.
Here is the meaning of Sean- Irish variant of John: God is gracious; and a gift from God.
A gift from God is where I began to get emotional. I know God is us only what we can handle and I know God selected Sean for us and Sean is truly a gift.
But it really brings to home about God only giving us what we can handle and God picks special people for special babies.
I heard that over and over again after Sean was born early and than finding out about the stroke, the seizures, the schizenphally, and everything else it really has a different meaning to me.
God gave us Sean because he knew we could handle it and love him for everything he currently is and will be.
As you read it you may very well especially if you know our story.
Here is the meaning of Sean- Irish variant of John: God is gracious; and a gift from God.
A gift from God is where I began to get emotional. I know God is us only what we can handle and I know God selected Sean for us and Sean is truly a gift.
But it really brings to home about God only giving us what we can handle and God picks special people for special babies.
I heard that over and over again after Sean was born early and than finding out about the stroke, the seizures, the schizenphally, and everything else it really has a different meaning to me.
God gave us Sean because he knew we could handle it and love him for everything he currently is and will be.
Wednesday, October 8, 2008
Please SIGN Petition for Preemies
Please sign the petition for Preemies. As a preemie mom I know how much it would help to find out why this is happening.
Sean when he was born:
Petition for Preemies
1. We urge the federal government to increase support for prematurity-related research and data collection as recommended by the Institute of Medicine and the Surgeon General’s Conference on the Prevention of Preterm Birth, to:
(a) identify the causes of premature birth;
(b) test strategies for prevention;
(c) improve the care, treatment and outcomes of preterm infants;
(d) and better define and track the problem of premature birth.
2. We urge federal and state policymakers to expand access to health coverage for women of childbearing age and to support smoking cessation programs as part of maternity care.
3. We call on hospitals and health care professionals to voluntarily assess c-sections and inductions that occur prior to 39 weeks gestation to ensure consistency with professional guidelines.
4. We call on businesses to create workplaces that support maternal and infant health.
1. We urge the federal government to increase support for prematurity-related research and data collection as recommended by the Institute of Medicine and the Surgeon General’s Conference on the Prevention of Preterm Birth, to:
(a) identify the causes of premature birth;
(b) test strategies for prevention;
(c) improve the care, treatment and outcomes of preterm infants;
(d) and better define and track the problem of premature birth.
2. We urge federal and state policymakers to expand access to health coverage for women of childbearing age and to support smoking cessation programs as part of maternity care.
3. We call on hospitals and health care professionals to voluntarily assess c-sections and inductions that occur prior to 39 weeks gestation to ensure consistency with professional guidelines.
4. We call on businesses to create workplaces that support maternal and infant health.
Thanks
Monday, September 29, 2008
Sensory Integration Meltdown
So something has come over my little boy and I can not figure out the trigger point. This morning was a rough morning. Patrick and I went in his room to wake him up and get ready for the day. He immediately started screaming and crying which is not normal. He usually will stretch his arms and legs and start helping us take his pajamas off.
Today was way different. As we was screaming Patrick and I try to console him and he just started kicking, hitting, and hyperventilating because he was so upset. We tried everything to calm him down and nothing was working. Between the both of us we got his pajamas off and starting to change his diaper and he screamed NO DIAPER CHANGE. Some how some of his senses were off this morning.
It took us awhile but we got his new diaper on and eventually his clothes for the day. We then proceeded to try and put his shoes and socks on. His new shoes he loves we just got that LIGHT UP. He normally is upset if we take them off.
After he was completely dressed he got down off of his bed and ran to the bathroom where I was finishing getting ready to go to work and said I love you mommy and started to quiver. It melted my heart and I was ready to have a meltdown.
I don't know what triggered his emotions this morning. I know it is sensory related because this was not a temper tantrum it reflected nothing as his normal temper tantrums do. He has done this a few times at night before bed a couple of weeks ago.
I think it is sensory because it seemed he got upset with any type of touch or expected touch. He is normally would love a kiss and hug in the morning not this morning he kicked or hit when we tried. I am emotional mess today sitting at my desk trying to figure out what happened to my little boy this morning. I wish I knew how to prevent them from happening.
We started a journal writing down what he eats, when he sleeps, wakes up each day to try and find a trigger.
Yesterday he napped normally, had a play date which he loved, and actually ate dinner.
Eating dinner these days has been a challenge. Lately he would rather play and not eat. Thanks for stopping by.
I know there are a lot of unknowns about the brain but there are a lot of unknowns I have a lot of unknowns myself but I am trying to figure this all out. I know Sean's stroke affected his parietal lobe, frontal lobe, and temporal lobe because of the closed lip schizenphally.
Today was way different. As we was screaming Patrick and I try to console him and he just started kicking, hitting, and hyperventilating because he was so upset. We tried everything to calm him down and nothing was working. Between the both of us we got his pajamas off and starting to change his diaper and he screamed NO DIAPER CHANGE. Some how some of his senses were off this morning.
It took us awhile but we got his new diaper on and eventually his clothes for the day. We then proceeded to try and put his shoes and socks on. His new shoes he loves we just got that LIGHT UP. He normally is upset if we take them off.
After he was completely dressed he got down off of his bed and ran to the bathroom where I was finishing getting ready to go to work and said I love you mommy and started to quiver. It melted my heart and I was ready to have a meltdown.
I don't know what triggered his emotions this morning. I know it is sensory related because this was not a temper tantrum it reflected nothing as his normal temper tantrums do. He has done this a few times at night before bed a couple of weeks ago.
I think it is sensory because it seemed he got upset with any type of touch or expected touch. He is normally would love a kiss and hug in the morning not this morning he kicked or hit when we tried. I am emotional mess today sitting at my desk trying to figure out what happened to my little boy this morning. I wish I knew how to prevent them from happening.
We started a journal writing down what he eats, when he sleeps, wakes up each day to try and find a trigger.
Yesterday he napped normally, had a play date which he loved, and actually ate dinner.
Eating dinner these days has been a challenge. Lately he would rather play and not eat. Thanks for stopping by.
I know there are a lot of unknowns about the brain but there are a lot of unknowns I have a lot of unknowns myself but I am trying to figure this all out. I know Sean's stroke affected his parietal lobe, frontal lobe, and temporal lobe because of the closed lip schizenphally.
Monday, September 22, 2008
Turning 29 Oh my
Turning 29........ and everyone keeps telling me that I need to live it up since it is my last year in the 20's. Tell me how to live it up?
So I guess that is a little over 29 words but what else is there to tell about being 29? What have you done and loved.
So I guess that is a little over 29 words but what else is there to tell about being 29? What have you done and loved.
Monday, September 15, 2008
The Brain and its Lobes
The brain and there functions in way I can understand and make sense of what is going on with our little guy!
Ever since we have found out that Sean suffered a stroke, has a whole in his brain, is having seizures I have been trying to figure out what lobes are effected and what each lobes function is inside the brain. Here is what I have figured out after spending tons of time on the internet.
Sean’s stroke happened in the parietal lobe and this is what I was able to find out:
It is located above the occipital lobe and behind the frontal lobe. The parietal lobe integrates sensory information from the different senses, especially spatial sense and navigation. The parietal lobe plays important roles in integrating sensory information from various parts of the body. The parietal lobes can be divided into two regions one involves sensation and perception and the other is concerned with integrating sensory input. The first function integrates sensory information to form a single perception (cognition). The second function constructs a spatial coordinate system to represent the world around us. Individuals with damage to the parietal lobe often show striking deficits, such as abnormalities in body image and spatial relations.
And of course the best part is much less is known about this lobe than the other three in the cerebrum. Great thanks. I know that there is still so much to learn about the brain. But don’t researchers and doctors know that we need to know more about all lobes but I NEED to know more about this one. My unborn baby had a stroke and it affected this lobe (well it affected three lobes…but occurred in this lobe) Okay enough said above since there is not much out there on the parietal lobe.
Let’s move to the frontal lobe. The frontal lobe is located at the front of each cerebral hemisphere and is in front of the parietal lobe and above the temporal lobe. It is separated by the primary motor cortex from the parietal lobe. So this makes sense of why the frontal lobe is affected from the stroke. The function of the frontal lobe involves the ability to recognize future consequences resulting from current actions, to choose between good and bad actions….. aka behavior. The frontal lobe are considered our emotional control center and home to our personality. The frontal lobe are involved in motor function, problem solving, spontaneity, memory, language, initiation, judgement, impulse control, and social behavior. The frontal lobe are also thought to play a part in our spatial orientation, including our body's orientation in space. This makes sense since Sean has body space issues.
The last lobe affected by the stroke and everything else is the temporal lobe. This is also where Sean is having seizures at. The temporal lobe involves speech, memory, and hearing. It is highly associated with memory skills. Seizures of the temporal lobe can have dramatic effects on an individuals personality. Temporal lobe epilepsy can cause aggressive rages. Lets hope that this is not the case for Sean.
If anyone is interested in learning more I got most of my information from the following websites.
http://www.neuroskills.com/braininjury.shtml
http://upload.wikimedia.org/wikipedia/commons/9/9f/Brainlobes.svg
Ever since we have found out that Sean suffered a stroke, has a whole in his brain, is having seizures I have been trying to figure out what lobes are effected and what each lobes function is inside the brain. Here is what I have figured out after spending tons of time on the internet.
Sean’s stroke happened in the parietal lobe and this is what I was able to find out:
It is located above the occipital lobe and behind the frontal lobe. The parietal lobe integrates sensory information from the different senses, especially spatial sense and navigation. The parietal lobe plays important roles in integrating sensory information from various parts of the body. The parietal lobes can be divided into two regions one involves sensation and perception and the other is concerned with integrating sensory input. The first function integrates sensory information to form a single perception (cognition). The second function constructs a spatial coordinate system to represent the world around us. Individuals with damage to the parietal lobe often show striking deficits, such as abnormalities in body image and spatial relations.
And of course the best part is much less is known about this lobe than the other three in the cerebrum. Great thanks. I know that there is still so much to learn about the brain. But don’t researchers and doctors know that we need to know more about all lobes but I NEED to know more about this one. My unborn baby had a stroke and it affected this lobe (well it affected three lobes…but occurred in this lobe) Okay enough said above since there is not much out there on the parietal lobe.
Let’s move to the frontal lobe. The frontal lobe is located at the front of each cerebral hemisphere and is in front of the parietal lobe and above the temporal lobe. It is separated by the primary motor cortex from the parietal lobe. So this makes sense of why the frontal lobe is affected from the stroke. The function of the frontal lobe involves the ability to recognize future consequences resulting from current actions, to choose between good and bad actions….. aka behavior. The frontal lobe are considered our emotional control center and home to our personality. The frontal lobe are involved in motor function, problem solving, spontaneity, memory, language, initiation, judgement, impulse control, and social behavior. The frontal lobe are also thought to play a part in our spatial orientation, including our body's orientation in space. This makes sense since Sean has body space issues.
The last lobe affected by the stroke and everything else is the temporal lobe. This is also where Sean is having seizures at. The temporal lobe involves speech, memory, and hearing. It is highly associated with memory skills. Seizures of the temporal lobe can have dramatic effects on an individuals personality. Temporal lobe epilepsy can cause aggressive rages. Lets hope that this is not the case for Sean.
If anyone is interested in learning more I got most of my information from the following websites.
http://www.neuroskills.com/braininjury.shtml
http://upload.wikimedia.org/wikipedia/commons/9/9f/Brainlobes.svg
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