EEG & Blood Work & Sick

Here is a picture of our sick little bunny....................

I just got the results that there was no seizure activity during the EEG. But that it really didn't get us any where from where we were before the EEG. The pedi said that the results mean nothing since he was awake and moving the entire time. He was very mad that they did not sedate him even though he sent in a request to sedate him orally if needed. The nurse said she wasn't comfortable sedating him.

He said we are to write down every time we see him space out the date and time and if we see a lot of them we will redo the EEG. I should get a copy of the entire reading and notes from the neurologist who read them this weekend. The pedi is also going to send us to a pedi neurologist too just to see what his or her thoughts are too. He will be watched very carefully.

But right now I can not put him thru something like this again and maybe that makes me a bad mom, I am not sure but it is just to much in this short period of time. The MRI was one month ago from today. A lot has gone on.

As for the blood work...............

Most of them that have come back so far are okay but his protein tests showed something him and the pediatric hematologist did not like so we are being sent for two more tests. He said once we do the next ones we will know what to do from there. We are still waiting to hear back on other blood tests too that have not come back yet.

On top of all of this Sean is extremely sick he has had a fever of 104 or so some a little higher some a little lower since Sunday. Our Easter bunny was not feeling to great and is not eating he ate some apple sauce and a banana tonight and is barely drinking anything. The pedi said his throat and tonsils are inflamed but we came back negative for strep so we have to wait it out. The doc said if he doesn't have another two wet diapers by tomorrow AM we have to go there for a dehydration test.

Thanks for all of the thoughts and prayers on this emotional roller coaster.

Blood work, EEG, and ice cream

Well on Tuesday we went to try and get the blood work done on Sean and they poked him twice once in each arm and it didn't work because he kept moving and would not calm down or sit still. But what 2 year old does sit still and calm when there are needles coming his way. They told us to come back on Wednesday.

So we went yesterday afternoon, brought the paci, the binky (blanket), milk, and gold fish and started the process. They poke him twice and got some blood and than he moved and the needle moved from the vein. They didn't want to poke him again but I did not want to bring him back so we let him play and run around drink water from a big boy cup even though his shirt wore most of it. After a little while more we decided to try and get the last amount of blood we needed which was about 4 ml's so they decided to have him hold a warm pack in his hand and they poked his finger and got the remaining 4 ml's they needed. The funny think is he didn't react with the finger being pricked he was still his happy self and we are all glad that we won't have to go back for a while or at least we hope to not have too.

We went home and had dinner and since Sean was such a brave little boy, I decided to make him an ice-cream cone. I was very impressed on how he ate the ice cream and how he didn't mind the mess:) Which he normally does.



I then got a call from the pedi's office about the EEG and to call the number they gave me and they will tell me when it is scheduled for. It was after scheduling hours so I called today. I was going thru the process and they said that they had a cancellation and we can go tomorrow at 8 am have to be there by 7:30. I jumped on that because I just want to put more of these tests behind us...as most parents do.

They told me that Sean is only able to sleep 4 hours tonight. How am I suppose to keep him awake.......... it is going to be a long night I believe but at least we will have most of the weekend to catch up on sleep. Wish us luck and send prayers.

Thanks,

From a soon to be sleep deprived mommy