Monday, July 21, 2008


So we have great news all around for the most part to report.

The pedi hemo. said that his levels of Protein C are still low but a little bit higher than they were a few months ago. We tested for a lot of other more common blood clotting disorders and some were negative and some were positive but the ones that were positive turned out later to be negative when they did other tests within those tests. (Sorry if I am confusing any one)

The second new is that Sean finally got air he JUMPED. It was only a little bit off the ground but he did it and both feet were off the ground at the same time.

He had is 6 month review with his PT and he is still around 21-22 months level for locomotion skills, and ball skills. He has come a long way and she is very proud of him as well.

He will have his OT reviews and Speech reviews over the next few weeks.

And lastly I have been having emotional thoughts of telling everyone or certain family and friends about Sean. I too as some of you have felt the guilt and curious of our little ones will resent us later for telling people. But I am honestly going to go with my mommy gut and instinct and just tell as many people as I can and get as much awareness out that anyone and everyone can have a stroke.

The more I think about it, the more I think maybe Sean will be proud that I can help make a difference in another ones lives and families and get the word out and TELL everyone so will stop happening or how to get an earlier diagnosis.

Anyone can have a stroke, children, adults and unborn babies can HAVE STROKES.

Friday, July 11, 2008

Sean was on

Sean was on people and I didn't even know it. I wish I found out sooner but I remember submitting his picture a while back and this was posted in November of 2007.

My manager at work was searching for birthday cake pictures and she found him on People Magazine. Wow. I am shocked and excited. This just made my day.

Here is the link if you are interested in seeing his picture!,,20146975_20161849_3,00.html

Thursday, July 3, 2008

Happy a safe and Happy 4th of July

Just wanted to wish everyone a happy and safe 4th of July! We are potty training this weekend starting today! Big boy underwear all weekend except naps and bedtime!