Wednesday, May 27, 2009

Big Boy Underwear Day 5

So Sean has been wearing big boy underwear for five days now.

On Saturday he went all day accident free

On Sunday he went all day accident free

On Monday he went all day accident free

On Tuesday he went to school, told the teacher he had to go potty, and had a slight (few dribbles) on the bus ride home. No other accidents the rest of the day

Today he went all day accident free till this afternoon and he peed all over the place and than cried and said he still had to go potty and than went poop on the potty and the rest of the night accident free.

Question is I know accidents happen but is he not ready for this? Some people are telling me that he is not ready if he has already had two accidents. He just forgets some times especially when he is playing and really into something.

What do you think. I think he is ready he normally always tells us he has to go. He pees and poops on the potty no problem.

So what do you think? Continue with the big boy underwear or go back to pull ups?

Welcome to McDonalds may I help you

This is too cute.

Welcome to McDonald's may I help you?

Sean was so cute playing McDonald's at my aunts
weekend BBQ. It was funny too.

Tuesday, May 26, 2009

Enjoying the park

So we have been going to the park at least once a day ever since he has felt better and when it doesn't rain:)

It is out of focus but I still think it is super cute but I am biased:)

Here are a few pictures from Friday at the park. I am impressed on how much he can do at the park, I have slight panic attacks at times because I worry about everything and think he is going to fall but he amazes me each time.

Climbing up the mountain, that has a dinosaur under it (it actually does but Sean says it is scary)

Monday, May 18, 2009

Life as we know it and more

So there has been a lot going on with a lot of different aspects of my life. But just to name a few.

1. Sean and I have been enjoying the nice weather, while daddy is at work. We have been going to the park at the school close by. He rides his bike and I walk it is nice exercise that we can all use.
2. I planted tons of flowers this weekend. I planted them all along the front of our house. I dug up grass around a tree and planted more. I trimmed our evergreen trees/bushes. I still have a little more planting to do. When I am done I will post pictures.

3. Patrick, Sean, and I had ice cream cones last night because Sean ate cooked carrots. Gosh the things we can bribe ice cream and kids with

4. I am exhausted after along weekend of working around the house (the outside of the house that is)

5. I am exhausted just thinking about the inside of the house. Once I clean it is only a matter of a few minutes before it is dirty again.

6. Sean has two weeks left of school and than has one week off and we start summer school.

7. Sean is refusing to take naps but is Mr. Crabby Pants

8. I had a job interview today that I hope I get but there is only 4 spots and over 25 applicants. We shall see.

9. I took tons of pictures of Sean yesterday playing in the sand box which he loves to play in now, if I could only get him to use his right hand in the sand. Any suggestions?

10. Seans fav. song is the Old Man is Snoring for this week LOL
11. Sean is going potty on the potty all day now but doesn't always remind us he has to go when he has big boy pants on. We are getting there though!

Thursday, May 14, 2009

Dr, ER, Breathing Treatments, Dr, and more

So we are sick in our house Sean has strep throat on Sunday evening he had a fever of 103.2 and on Monday morning I called the pedi he brought us in looked him over did a rapid strep test and it was positive.

Started the meds and his fever kept coming back, his cough got worse and we started to wheeze. By Tuesday night he was wheezing and having problems breathing. His nostrils were flaring so we called the pedi and he sent us to the children's ER.

We got to the ER they took his temp it was over 102.8 with the forehead test, they gave him meds it went down, took us for a chest xray which he was a complete angel for (I was shocked since past experience with the chest xray were not so good)

After his chest xray we had to wait awhile and he was getting sleepier and sleepier mind you it was past bed time at this point. We finally got called back and they measured his breathing and it was at 92 and they want it above 95 so they had the therapist come in and give a breathing treatment while we sat and watched Thomas. He did great for most of the first treatment but after that it was nearly impossible but after four of us held him down he started to cooperate.

He then got albetural (sp) and oral pred. which giving to a child late at night was not a good mixture. He didn't go to sleep until after midnight and I had to get up with him every four hours to give a breathing treatment and he has been taking 5 different meds everyday now since and is starting to go stir crazy here in our house.

He has strep throat, viral bronchitis (sp), fever, runny nose, cough, he won't eat but at least he will drink Gatorade but only red.

Yesterday we went back to the doc for a follow up and he is still wheezing, fever, cough and etc is it ever going to end?

Monday, May 11, 2009

Littlest Heroes

So I am on a message board and this was sent through from someone on it. I went and clicked on it and this is an amazing group.

The Littlest Heroes Project

Basically you can apply and a photographer will come to you and give you a free session and share your child's story. It is for all of us parents out there that have little heroes.

Here are some of the heroes that would be eligible.

Eligibility for the project:
Any child or young person (Infant-21) that is currently fighting or has fought or suffers from any of the following: Autism, Alopecia, AIDS, Bell's Palsy, Cancer,Chiari Malformation,Cystic Fibrosis, Cerebral Palsy, CHD,Childhood Stroke, Servere Diabetes, Down Syndrome, HIV,Immune System disorders and diseases, Kidney Disease, Muscular Dystrophy, Neurocutaneous Syndromes, Osteogenesis Imperfecta, Shaken Baby Syndrome, Sickle Cell Anemia, Spina Bifida, Tay-Sachs Disease, and other serious childhood illnesses and life altering disabilities.
Please check them out.

Friday, May 8, 2009

Update on Sean's Seizures

So I spoke with the neuro and his nurse and we increased his morning dose to now be the same as the evening dose.

They think it could be something with his metabolism since he just had a huge growth spurt and is so active.

We have to monitor him closely and call if we see another one before Monday.

On Monday the neuro coordinator is going to call me and discuss EEG options and refer us to get his blood work checked.

But right now we got to figure out the correct dosing. So please keep your fingers crossed and pray we DON'T see another seizure.

Thanks for all the prayers.

Thursday, May 7, 2009

Prayers Requested Sean just had a seizure

So Sean just had a seizure and I am waiting for my neuro to call me back I spoke the nurse and she said he will call me soon.

I am totally freaked out and about to cry why can they just not happen.

His eyes blinked continuously, his lips chewing, and his left arm and hand jerking and I could not get his attention. I am ready to cry but don't want to cry in front of him.

Thanks in advance for the prayers.

Wednesday, May 6, 2009


So we got Sean's AFO and SMO's last night and since he has had them on he has fallen at least 5 times while trying to walk, run, stairs, and play.

I know they take extra time to get use to but did this happen with your little ones?

Sean fell face first on the ground last night, granted he didn't even cry but he has a nice big red mark on his face that made me cry.

If this did happen how long did it take to get use to, or how did you get them use to them?



Saturday, May 2, 2009

I'm a stroke survivor

Here is Sean attempting to say I'm A STROKE SURVIVOR! It is to cute but I am biased:) I tried to get him to blow a kiss too. The first video he is clearer. This was taken today.

Take 1

Take 2

I am going to attempt something like this when I send emails out to collect funds for the Heart/Stroke Walk this Fall.


Pediatric Stroke Awareness Day

Happy post 100! Heres to another 100!

So today is Pediatric Stroke Awareness Day so please spread the word.

Sean and I wore our Big Steps for Baby Stroke tshirts all around today from therapy to all of our stops in and between.

I have also created a new blog for Pediatric Stroke Survivors and I am going to let people write there stories because knowledge is power.

If you are interested in learning more about pediatric stroke please visit the links to the right. There is a lot of pediatric stroke survivors.

In fact 1 in every 4000 babies suffer a stroke each year and I really think it is even more than that. That is just what we are being told.

So if you could please blog about pediatric stroke awareness day, facebook, myspace or just tell one person that would help us out a lot.

Thanks for sticking with me on my first 100 posts here is to another 100. I will post something special about today soon. I just can't upload right now Patrick is setting up our new desk and my camera hook up is some where in the mix. I will post it later tonight so check back soon!