Wednesday, December 31, 2008

Our year in review

So I can not believe we are almost in the year of 2009. Today is the last day of 2008 and it has flown by so fast. We have had an emotional year it was quite a roller coaster. We found out about a lot of medical stuff about Sean. We found out that he suffered a stroke in utero, the epilepsy and complex partial seizures, the closed lip schiz. (whole in the brain), the right sided hemi cerebral palsy.

But we also have a lot to be grateful and thankful for. Even though Sean has been through so much and experienced to much any child his age or lifetime should have to experience....He is here and doing absolutely amazing. He amazes us daily and makes our life complete.













Happy New Year to everyone and God bless

Tuesday, December 30, 2008

40 days and counting!

So my niece was born this past weekend so I am a proud auntie again to miss Taylor Reese. She is beautiful and I love the name too.

So tomorrow is New Years Eve can you believe it is almost January of 2009. I can not. That means Sean is almost 3:(. My baby is no longer a baby but a big boy:)

Sean's 3rd birthday is only 40 days away where did the time go? I have been an emotional wreck about Sean turning 3 and not having another baby already. I know I know it would help if we actual try harder and time it, instead of just "trying"

But I am so scared of trying and everything we have been through with Sean. The 4 weeks of bed rest, him being 7 weeks early, the nicu, and nicu stay. Not being able to hold my baby for 48 hours after he was born, to not letting me have him in my room at the hospital, to have to leave the hospital with out him. For the struggles, and medical tests, procedures, dx's (the stroke, the epilepsy, the mild rh cp, the closed lip schiz., and all of the therapy. I don't know how I could handle this times two if we had too. I know we would some how some way because God only gives us what we can handle.

But what do I do. How to I overcome how scared I am? The hardest thing in my life was to leave Sean in the hospital and have to leave the maternity ward in a wheel chair with an empty car seat.

Uh the emotions.................................

On another note we still have not gotten our theratogs that were ordered um in OCTOBER! Hello where are you? Supposedly they will be here soon. We will see I GUESS!

Thursday, December 25, 2008

Hapy Holidays

So Sean was feeling better by last night and this morning was a lot of fun. I got a lot of great action and cute shots. Here is one of my favorites.

Merry Christmas and God Bless everyone!

Wednesday, December 24, 2008

Merry Barf-Mas

So I just wanted to wish everyone a very Merry Christmas and Happy Hanukkah and or Happy Holidays.

You got it we are celebrating a very Merrry Barf-Mas. Sean was up all night puking. He puked all over his bed and himself, it was even in his ears:( around midnight, clean him off, took his pj's and linens. Gave him a nice long warm bath. Got him dressed again, went into our extra bedroom and read books. As I was walking out of the room he puked again all over this bed.

Got him undressed, and cleaned again, changed clothes again. Went in the bathroom and sat there for awhile. We then went downstairs on the couch to watch some tv (Thomas the train) and cuddled in a blanket. He sure enough about to barf again. I got up and ran into the kitchen to the sink but didn't get there in time and puke was all over me and him.

Patrick came and got him undressed and cleaned up again new pj's again. I went to go change and clean up. Poor little guy. We than went back to the couch to watch more Thomas and a few mins later he had to puke but we got him into the kitchen in time and near the sink. This time he didn't get it on his pj's or us:) He than dry heaved a few times. My poor little man.

He finally stopped puking around 2:30 am I was up till 3 AM and than went to bed and Patrick woke me up at 9 this morning. I am so tired, Sean is tired, and Patrick is tired. Sean slept on the couch from about 4 am to 9 so at least he got some sleep.

This was not what I wanted for Christmas, but I know it could be worse and I am thankful and grateful for everything I have. At least it will be memorable:)

Although we won't be able to go the family parties tonight or tomorrow we can have our own family party hear with the three of us.

So HAPPY HOLIDAYS and Love to you all~

Tuesday, December 23, 2008

The Eve of Christmas Eve

So Sean and I had a wonderful day today playing together inside. It started off by waking up to eat Life. Yummy:) Than Miss Meghan came to our house today (she is Sean's Developmental Therapist) she is so nice and fun. Sean loves playing with her.

While Miss Meghan was over we were about to start a play date too. Sean's buddy Tyler came over. They played kitchen, little people, cars, Thomas, danced, ran, ate mini English muffin pizzas, apple slices and watched a video. It was a great play date. Sean went on the potty twice while Tyler was over he is becoming such a big boy.

We made peanut butter cookies yesterday and oatmeal. I am going to make choc. chip tonight. Here are a few pictures of Sean helping me make and eat:)

Monday, December 22, 2008

Twice upon a Christmas

So Sean and I are home today by ourselves since Patrick had to work. I asked Sean what he wants to do today. He gave me quiet a list.

1. Go get a bagel, (he loves bagels) we did go in our pajamas even though it is -4 degrees outside.

2. Watch movie

3. Play with baby Jesus and Little People

4. Make cookies

5. Eat cookies

6. Lightening McQueen song and dance (Gone by Sheryl Crow)

So hear we are eating our bagels, well I finished my half and he is still eating his half in our pajamas watching Twice Upon a Christmas with Mickey Mouse.

If you have not seen it I HIGHLY recommend it, it is so cute, it is about a bunch of different stories with all of the different characters. It is SUPER CUTE and well worth the PPV rental of $2.95.

Have a great day I have lots of other stuff to do with Sean on our list today:)

Sunday, December 21, 2008

Day 6 and Day 5

So I was to busy to post yesterday so I apologize. We are finishing all of our wrapping, and a few last gifts I must admit. I feel as time has flown by this year with out a lot of time to shop, wrap, and decorate.

One thing I have made extra time for is remembering and reflecting back on this year just seeing how much we have changed, how much Sean has changed.

Not only changed but how FAR he really has come. He can jump, run, skip, dance, walk up and down the stairs, go potty on the potty. He will take a bath with some bubbles, play in sand, walk on grass, go under water in the pool, can do a somersault with help of course, pump his legs on a swing, put together a puzzle, say his ABC's, colors, count to 20. He can have a conversation back and fourth with us, he loves to read and be read to, says thank you, I love you, your welcome, gives kisses, blows kisses. Loves to ride his tricycle in which he can actually reach the pedals, will climb to the top of the slide and go down all by himself. Yeah I know this is short and to the point but my little baby is now a BIG BOY. He tells us daily that he is a big boy and tonight he just showed us again by going potty on the big boy potty.

Enjoy your family as much I as I enjoy mine.

Friday, December 19, 2008

7 days Let it Snow Let it Snow Let it Snow

So since we are literally snowed in, it has been very hectic. I am still not feeling 100% but I have to work today, at least I get to work from home.

So we are started off the day on a good note, Sean woke up, we gave him a bath, he really needed one last night but with me being so sick and Patrick tired we waited till this morning.

Sean took his bath got out got dressed ate breakfast and than the temper tantrums started. He wanted me to play with him and I tried to explain I needed to work I have to make 90 calls today, yes 90 which is not easy to do with a 2 1/2 year old screaming in the back ground and a dog barking.

It has calmed down I have played a little, worked a little, and feel sick still. ugh..... I need a nap but still have to many calls to do and 4:00 can not come quick enough.

We are getting more snow and an ice storm tonight oh joy the fun in winter in the Midwest!

At least after 4 today I am off until 12-29 yeah I can not wait!

Thursday, December 18, 2008

8 days and counting

Well this is going to be a rough one today since I was sick throwing up all night I think I have the stomach flu boo hoo:( Go away go away, and please pray Sean won't get this that will suck since Christmas is almost here.

On a better note when we got home last night there was a box for Sean. He goes mommy there is a box for Sean it came from the mailbox.

So we opened it and it was the Litte People Nativity set. My mil bought it for him. He asked her the other day mama you buy me baby jesus:) It was so cute he loves it, he set it up next to his tree in his room, had to keep the tree lights on last night so he could see baby jesus:)

Wednesday, December 17, 2008

9 days of Christmas

I meant to start this at 12 days but time has just flown by. I am going to write a little something each day until Christmas.

I was searching for a poem today that talked about my life, things I am grateful for and how blessed I really am. God only gives us what we can handle.

Heaven's Very Special Child (Author Edna Massionilla, December 1981)

A meeting was held quite far from earth!
It's time again for another birth
Said the Angels to the Lord above,
'This special child will need much love.

His progress may seem very slow,
Accomplishments he may not show,
And he'll require some extra care,
From the folks he meets way down there.

He may not run or laugh or play,
His thoughts may seem quite far away,
In many ways he won't adapt,
And he'll be known as handicapped.

So let's be careful where he's sent,
We want his life to be content.
Please, Lord, find the parents who
Will do a special job for You.

They will not realize right away,
The leading role they're asked to play,
But with this child sent from above,
Comes stronger faith and richer love.

And soon they'll know the privilege given,
In caring for this gift from Heaven,
Their precious charge, so meek and mild,
Is Heaven's very Special Child.'

This poem brought tears to my eyes. I know Sean can walk and run, but he is a Special Child to me, to Patrick, and to everyone else who loves him. He is a true fighter, survivor and hero.

Tuesday, December 16, 2008

Deals of the day

So I figured if and what deals I find I should post them here.

Today Amazon is offering a great deal on Leap Frog Fridge Phonics Magnetic Alphabet Set $8.99 they sell $25 gift cards for $10 and use discount code SANTA for 80% off

Barnes and Noble safe 25% on one item coupon code P7P7Y9N

more to come as I find them

Monday, December 8, 2008

Good and not so bad

So sorry I didn't update earlier, our weekend was crazy. After going to our appointment at 8 AM on Saturday after a 10 min car ride took almost an hour because of all of the snow and the lack of plowing so early. It took us an hour to get there, luckily I was smart and left early so I had enough time.

Before we left we had to put eye drops in Sean's eyes to dilate them, so I had to remember to bring the stroller because he wouldn't be able to walk very well and with all of the snow on the ground I didn't want him to fall.

So we arrived around 7:55 and I open Sean's door and he goes "mommy I don't walk in that, it is dirty". He has OCD and Sensory Issues and thinks snow is dirty and doesn't want to touch it and if it gets on him he screams and screams until it comes off or melts. (we are working on that, total different topic and post- Lets just say he had a meltdown because snow got on his boots earlier in the week and snow has been a nightmare since)

So I put him in the stroller and try to plow through the snow on the ground that has not been plowed and got in safely with not to much crying.

We got upstairs and waited our turn. We finally got called around 8:30 the nurse brought us back and started to show Sean some pictures on the screen and he didn't really want anything to do with what was going on. He didn't want to sit in the chair, stand on the chair, or be any where near the chair. He wobbled out of the room (he had a hard time walking from the dilated eyes)

She said lets go in the kids play room and see if we can do a few more tests. So we went to the play room and she put these funny glasses on Sean (I think 3-D) and he had to grab at the animals that were jumping out at him. Not sure if he understood how to do that? Then we went to a big bug and he immediately grabbed at the wings (like he was suppose to) so I was happy.

The nurse than told me that the doctor is running behind and is not even in the office yet but on her way and with the snow she will probably be running behind about an hour. So we put in the movie Duck Tales (cute but Sean was not that interested)

We watched the movie and than two dirty diapers later it was finally our turn. We went back in the room with the scary chair that Sean climbed into like a big boy. The doctor put the animals back on the screen and other objects. Sean started to name them off like hand, duck, cake, phone, etc. She said that he is doing good, his eyes are still the same as they were last time so they are not worse but not better.

She told us to keep an eye on him and his eyes because he is near sided, she also said she wants to wait a few more months and see if they get better. But if not we will need to do glasses and a patch but right now she wants to see if his eyes will correct themselves. That is great news but still something I have to worry about.

The worrying will never end:)

Friday, December 5, 2008

Eye Doctor Appt and other worries

So we have to take Sean to the pediatric eye doctor tomorrow morning. I am nervous because I have a feeling she is going to say we need to do the patch and glasses. I hope I am wrong because he has already had to go through and do enough already for a 2.5 year old. We have gone every six months to get his eyes checked. This past time they were a little better than the time before but still not where they need to be. Of course it is his right eye that is weaker, poor guy.

Any ideas on how I can make wearing a patch fun? I plan on incorporating pirates some how and making it fun but not sure how he will be with it. Like I said I hope we don't need them but my mommy instinct is telling me different. However I hope it is wrong. I will update after tomorrow mornings appointment.

My next worry is from what happened at 2 am in the morning/night last night this morning. Sean went to bed like normal woke up at 2 am SCREAMING HIS HEAD OFF saying "Don't take my toys away" and "I want my little people house, don't take my toys away"

I am not sure where this is coming from. He was sweating, screaming, hitting, kicking, breathing heavy. Both Patrick and I went in to his room and he told Patrick not you not you and mommy stay here with me don't leave me.

Broke daddies heart and melted mine. I sent Patrick to get a sippy cup of water to help settle down by sucking which worked but he kept crying and hyperventilating until almost 2:30, finally back asleep by 3:00 and than mommy went back to her room to try and fall back asleep.

The only thing I can think of that made this happen is that Sean fell asleep early and we had a crazy night and forgot to give him his seizure medication. I know I am the worst mommy ever for forgetting but we have so much stress in our life right now it is crazy. Stress needs its own blog:)