Seizures, Seizures, Seizures GO AWAY

So Sean as you can see from my title had more seizures this past week. He had 3 with in 36 hour period and they were a little different than his usual ones we have seen.

Two of them happened at school and one at home. His eyes rolled to the back of his head which they have never done before. It totally scared EVERYONE who saw them his aid, teacher, and me.

I called the neuro and they had us come in on Thursday the seizures happened Tuesday and Wednesday. We can not figure out anything that triggered them he is not sick no fever, cough, sniffles, nothing, hasn't had a growth spurt not sleep deprived.

We are nervous because of the new feature of his seizures the eye rolling. He is on trileptal right now of 4 ml twice a day and now he is taking 5 ml twice a day.

He has lost a couple of pounds since the last visit which he is just thinning out, his neurological exam was the same as last time which is good news.

We have to take him in for a sleep deprived EEG this Tuesday. We have to put him down to bed at 7:00 tomorrow night and wake him up at 2:00 AM and keep him awake until all of the leads are on his head. How are we going to do this and how I am I ever going to sleep again.

I got a part time job at the nursing home which I am excited about (that is another post) and have to work tomorrow from 3-11 PM and than have class Tues night 6-10 PM and work Wed 3-11 PM, class Thurs 6-10 PM and Fri AM I take my state boards test. Sat I have my Math test and I am working 3-11:0)

Life is definitely chaotic right now. I am stressed out.... to say the least!

Falling leaves and autumn fun

So this week the weather has been beautiful it has been in the 60's so it is actually FALL weather. A few things Sean and I have been working on. Sean loves all of the falling leaves, jumping in them, walking on them to hear the "crunch", seeing the wind move them all around.

He also loves feeding the ducks and geese which we got to do the other day at the pond. Today we went to a pumpkin farm and it was great because it was before school got out so there was no big kids around.

We went thru a hay maze, a corn field maze, and much much more. I have been enjoying all of the extra time I have with Sean while I am still home.

I finished my first nursing class now I just need to sit for my board exam on November 13th. So I have been studying for that as well as my math class. I have a math test on Saturdays.

Tomorrow we are going to carve, decorate his pumpkin. More pictures to come! He picked out a Pirate Mr. Potato thing for his pumpkin I am sure it will turn out cute! Sorry for the lack of blogging but between school and therapies and all of the fun stuff in between we are very very busy!

Sean is now only going to go to PT once a month and OT every other week besides the OT, SPT, and Social worker at school so that will free up more of our time too.

Fall

So fall is a GREAT time of year I love the fall. We get to play outside with out freezing or sweating most of the time right. But here in Chicago FALL can be different every time.

It has been so cold we have had to use our new HEATER already. At least today it is 60 degrees outside right? Here are a few pictures of Sean from over the weekend. We are so busy for the rest of the month and I feel as if I never have time to post.

I turned 30~

Well I have been super super busy with school, lab, clinical, therapy visits and doctor visits for Sean to take up a lot of my time.

But I just turned 30, I don't feel any different but everyone says that I should.

I am so tired by the end of the day going to school Monday thru Saturday is A LOT of work but it will be worth it.

We have also had a string of bad luck around the house.

First our dog was sick and costed us $700.00 I am glad he is okay but that is a lot of money

Second our A/C broke, and our furnace is on its last leg too so we jumped in and are getting a new A/C and Furnace put in in this weekend

Third our dryer broke but hopefully the part we ordered will fix it.

Fourth our freezer keeps popping open on our fridge.

The joy of owning a home sucks right now.

Well that is all I got right now have to get to my homework. We have at least 1 test a week.

Back to school times 2

Sorry I have not posted in SO LONG. Life has been hectic, and crazy as we all know it. Not only did Sean start school again, I am in school again too. I am going back to school to become a Nurse. I am so excited, but I know I have a long way ahead of me, but I have the desire and passion to do it and the support from my husband and family. Here are a few pictures of the night before school, since I am at school already before he gets on the bus and it rained for the first few days of school so Patrick couldn't take a picture outside. For the last few years I have thought about it and now is the perfect opportunity for me since I am unemployed.

I want to work with kids and help make a difference and now I just need to get there. So if there is a long time in between blogs it is because I have a TON of studying and homework to do.

I have only been in school since last Monday and already had two tests and read over 12 chapters. Today was my first lab, where we fed someone, and got fed blindfolded, take pulse, and blood pressure manually. My next test is on 10 chapters!

But at the end of my first class I can get a job at the hospital so I am excited about that too and at least I will have hands on experience for the rest of the classes.

So till next time, lots of reading:) Sean is keeping his glasses is on and we are still waiting on his SMO's and night brace to come in.

Our new man in his new glasses

Here is a great picture I got of Sean in his glasses. He is actually taking to them quite well and has been keeping them on. I will update more soon it has been a crazy few weeks and school starts this week.

I need $$$$$ to start growing on trees

So we met with a Dr. G yesterday and found out that the braces Sean has the AFO, and the SMO's are not doing it for Sean. The AFO is causing bruising around his leg and he is still falling a ton.

We were told he needs to get bilateral custom made smo's and a custom made night splint for his right side.

We also found out this past week that he needs glasses which we spent $219.00 I can only imagine what we are going to have to pay for all of these braces.

But we have to do them it is something he needs even if we don't have all of the money to pay for it since I am still unemployed. More on that to come.

Thanks for letting me vent and freak out about money. Then again who doesn't freak out about money.

Here are a few cell phone pictures of him trying on glasses. We should get his glasses later this week and we also get casted late this week too.