Friday, October 31, 2008

Happy Halloween

Hope everyone had a wonderful Halloween. Sean had lots of fun this year, I just wished he would stop and smile for the camera. Here are a few shots and a few old ones too:)

2007 when I had a little clown

2006 when I had a little froggy

Monday, October 20, 2008


So the walk was yesterday and it was a great day. It started off a little cold but ended up being a nice day for a walk. We had tons of people come out and support our team and as you can see to the right how much our team raised.

Sean got a red cap for being a survivor and so did my dad. Sean also signed the survivor wall it was so precious.

I am so proud of everyone involved and I know all of us will truly make a difference. Next year we get our own tent how awesome is that. I hope next year to even raise more money and more awareness.

Next year hopefully we will be able to get some corporate sponsors, and pediatric stroke awareness pamphlets too.

Our team shirts looked awesome as well. I hope to make more awareness through out this next year and to get more people involved and on our team to help make a difference. It just sucks because when I send info the media or newspaper NO ONE responds. How do you get them to respond?

I know there are many people out there who care and right stories about our precious little ones so that is what matters as long as there is awareness and people are listening it doesn't matter if it is my story or someone elses. I just want to make sure NO ONE else has to go through what we and many others are and have gone through.
Again THANK YOU to all of you who sponsered Sean and TEAM BIG STEPS FOR BABY STROKES.

Thursday, October 16, 2008

An emotional meaning about the name Sean

So I looked up the meaning of Sean online today out of curiosity what it says the meaning was and as I read what the meaning was I started to tear up.

As you read it you may very well especially if you know our story.

Here is the meaning of Sean- Irish variant of John: God is gracious; and a gift from God.

A gift from God is where I began to get emotional. I know God is us only what we can handle and I know God selected Sean for us and Sean is truly a gift.

But it really brings to home about God only giving us what we can handle and God picks special people for special babies.

I heard that over and over again after Sean was born early and than finding out about the stroke, the seizures, the schizenphally, and everything else it really has a different meaning to me.

God gave us Sean because he knew we could handle it and love him for everything he currently is and will be.

Wednesday, October 8, 2008

Please SIGN Petition for Preemies

Please sign the petition for Preemies. As a preemie mom I know how much it would help to find out why this is happening.

Sean when he was born:

Petition for Preemies
1. We urge the federal government to increase support for prematurity-related research and data collection as recommended by the Institute of Medicine and the Surgeon General’s Conference on the Prevention of Preterm Birth, to:
(a) identify the causes of premature birth;
(b) test strategies for prevention;
(c) improve the care, treatment and outcomes of preterm infants;
(d) and better define and track the problem of premature birth.
2. We urge federal and state policymakers to expand access to health coverage for women of childbearing age and to support smoking cessation programs as part of maternity care.
3. We call on hospitals and health care professionals to voluntarily assess c-sections and inductions that occur prior to 39 weeks gestation to ensure consistency with professional guidelines.
4. We call on businesses to create workplaces that support maternal and infant health.