Here is Sean's poster for DC Lobby Day, I am so excited. AHA/ASA put it on this blog
and on there facebook page. I am so excited!
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Living life after finding out Sean suffered an in utero stroke
About Me
- Erin
- I am a mommy to two. One living, one who is an angel. Sean is 4.5 and an in utero stroke survivor and to Kiera our precious baby girl who grew angel wings on November 5th, 2010 at only 5 weeks old due to congenital heart defects. This is a place for me to express my feelings, emotions, fear, anger, faith, to share her memory.
Followers
Fav. Blogs
- Baby Stroke Steps
- He Will Carry Me
- Ike Happens
- Jackson Po'okela Thats who
- Life with two cuties
- Little Bites of Heaven
- Live to Love and Laugh
- Monkey Paws
- Our Babies First
- Our Hemi Boy
- Owen's adventures
- Parentdise
- Pediatric Stroke Survivors
- Princess Leah
- Splendidmayhem
- Spunky Toes
- The Boz Brood
- The Elmers
- The Grant Family
- The Messy Monkey
- The Morrows
- The Unruhs
- The Walker's Fore
- To The Max
- Toddler Times
Childhood Stroke Awareness Day
FEEDJIT Live Traffic Feed
- 10 signs of a great preschool
- American Stroke Association
- Cutest Blog on the Block
- Dottis Weight Loss Zone
- First School Ideas
- Glossary of the brain
- Handouts for Special Needs
- Hungry Girl
- Info on Schizencephaly
- Kraft easy recipes
- National Stroke Association
- Obama vs Mccain
- Perinatal Stroke and Childhood Epilepsy
- Preschool Express
- Preschool Worksheets
- Thomas the tank engine and friends
- Toddler Fun
- Toddler Schoolhouse ideas
4 comments:
Awsome Erin! Can't wait to hear about your trip to DC. Sean is the ultimate cute poster child. lol
wow, it turned out wonderfully! and it is so cool it was featured!
Hi
just surfing in from Cheles blog ..What a cute little guy Sean is ....
My son also has partial complex seizures he is 24 years old now and I seen his first seizure when he was about 2yrs but the doctors thought it was from a fever even though he wasn't really very sick...
then his teacher seen him have one at school when he was in the 1st grade and we went to the nero docs and found out after his EEG he was having them quite often, we just couldn't see them.. after spending a few years trying to find the right medication without bad side effects...I finally said enough is enough and told the docs I wanted to try him med free... he has been off medication for at least 10 years and the seizures seem to have really slowed down.. I could tell as he got older, when he was having them.. he will stop talking in mid sentence, for a few seconds and then continue what he was saying when the seizure was over... He is also developmentally delayed and will never drive a car so total control isn't really to much of a issue for him although I still worry, but the meds definantly were worse for him ..
I am wondering is there a connection between strokes and partial complex seizures ??
I read your post right before this one about the sensory issue and while I haven't had trouble getting my Andrew to eat... when he was little (and even now a little bit) He WOULD NOT wear new clothes, they had to sit in his dresser forever for him to even try them on... I think it had to do with sensory issues I have brought up to the docs that I think he has a form of autisum but the all say no, but I am not convinced there is something with that but the docs don't see it..
As for Sean not eating dinner..I wouldn't make to much of a issue of it.. I have a 2year old little boy almost 3 and I swear I don't know what he survives on sometimes, he eats so little... from the sounds of it Sean is eating more at breakfast and lunch then Rylan eats in 2 days and I am not kidding ...
I am Happy to have found your blog and plan on being a regular reader ...
LaDawn
What a handsome little boy! ame over from Chele's blog. Wishing yu the very best in DC!!! Very nice poster!
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