So Sean as you can see from my title had more seizures this past week. He had 3 with in 36 hour period and they were a little different than his usual ones we have seen.
Two of them happened at school and one at home. His eyes rolled to the back of his head which they have never done before. It totally scared EVERYONE who saw them his aid, teacher, and me.
I called the neuro and they had us come in on Thursday the seizures happened Tuesday and Wednesday. We can not figure out anything that triggered them he is not sick no fever, cough, sniffles, nothing, hasn't had a growth spurt not sleep deprived.
We are nervous because of the new feature of his seizures the eye rolling. He is on trileptal right now of 4 ml twice a day and now he is taking 5 ml twice a day.
He has lost a couple of pounds since the last visit which he is just thinning out, his neurological exam was the same as last time which is good news.
We have to take him in for a sleep deprived EEG this Tuesday. We have to put him down to bed at 7:00 tomorrow night and wake him up at 2:00 AM and keep him awake until all of the leads are on his head. How are we going to do this and how I am I ever going to sleep again.
I got a part time job at the nursing home which I am excited about (that is another post) and have to work tomorrow from 3-11 PM and than have class Tues night 6-10 PM and work Wed 3-11 PM, class Thurs 6-10 PM and Fri AM I take my state boards test. Sat I have my Math test and I am working 3-11:0)
Life is definitely chaotic right now. I am stressed out.... to say the least!
4 comments:
Sean looked adorable in his Halloween costume. Wow, your schedule made me want to go crash on the sofa. Congrat on the new job.
Will keep pt and pp that they will figure out what is causing Seans seizures and make them go away.
Big hug, my children have never suffered from seizures but our dog Simba had gran mal seizures that scared the bejeezus out of me every time he had them. I know it has to be so much worse when it's your child.
Aww, he's so grown up and adorable. I really hope they stay away, the seizures that is.
Good luck Erin, thinking of you guys! I just took my state CNA test yesterday (think that is what you maybe are talking about and PASSED). I also work in a nursing home. I have really loved it. I won't start my nursing program till January or August depending on how everything works out. Anyways, good luck and keep us posted!
Erin, I'm so sorry to hear about Sean's seizures. That really does sound scary, and I hope the doctors find a way to control them quickly.
Could Sean possibly look any cuter in his Super Why costume? How adorable, and what a cool costume idea.
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