So we had Sean's follow up visit with the pediatric neurologist yesterday and we were waiting and waiting for the doctor to come in. He was behind and we were playing. Once the doctor came in he was talking to me and interacting with Sean.
Asking me question after question and Sean was laughing, smiling, playing and all of a sudden he is completely quiet no noise no sounds and the neurologist was saying Sean, Sean, SEAN, and I was too. He was out of it, his mouth moving like he was chewing something, and he was trying to pick like lint or something off his clothes even though nothing was there.
He had a seizure in front of me and the neurologist, I am beyond scared because after it happened he had a emotional breakdown, he was hysterical, tired, and just not himself. I am not concerned all of those meltdowns he has had maybe he had a seizure before them?
I mentioned to the neurologist that I thought last week he may have had one but I just thought no we haven't had any in so long and he just started school, the theratogs, and other changes.
The doctor is upping his meds a little bit and if he has another one we will decide if we need to do another EEG. I am hoping this will help and we won't have to torture him with another EEG.
Please say a prayer that he only had those two seizures because he was not getting enough meds and not that the whole in his brain is the cause.
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11 comments:
Praying for you guys!!!!! Let us know what happens! So, sorry this is happening!!
Thanks Amanda.
My word! I am so sorry. That is beyond scary!
I pray that things work out for you guys!
Thanks for stopping but and visiting for my Tuesday toot =)
-Joan
Thanks for stopping by my blog yesterday.
So sorry to hear about your son's seizures. I am a special ed teacher and one of my students had his first ever seizure in front of me last year. Thankfully it was more like what you described of your son's at the Dr's office, but can still be scary. I wish you luck in managing them.
I'm so sorry to hear this Erin. Praying for Sean.
sending up lots of prayers...
I will say a prayer for you guys and hope the increase in medication will work.
You have a very cute little boy and a nice little blog.
I am so sorry that you guys are having to deal with this. I will be thinking and praying for you guys. Please keep us posted.
OMG, Erin. I have goosebumps right now. I can't believe he had a seizure right then and there. Thank God you were with the neuro so he could see everything for himself. You are in our prayers!
Oh Erin how scary. Sending lots of pp that the adjustment to his meds helps. Big Hug.
You don't know me but I somehow have found your blog while looking up information on seizures. I will definately say a prayer for your little boy, as well as your family, as my 3 year old just started having seizures that sound very familiar to your experience. Please keep in touch.
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