Thursday, May 15, 2008

I went to the HEMATOLOGIST



So I went to the hematologist and he reviewed my dads, and Sean's blood work and he said that he is pretty sure just by the blood work of both my father and my son that I have the same blood disorder.

Sean's protein c and protein s levels are low and are considered a def. he said he tested me for both of those (hopefully will get the results next week)


He said if I do indeed have the protein def. I can not be on birth control, and most likely my ob will send me to a high risk ob the next time we decide to get pregnant and that I would need treatment for the blood so I won't clot as easily.

He told me there is no way to increase protein levels and that if I do decide to get pregnant again the next baby may have the same blood disorder. He mentioned that he didn't think this blood disorder or def. alone caused Sean to have the stroke but it could put him at risk later on.

It just makes me so emotional knowing that there is a chance that this could happen again, and it is not fair for anyone to go through this.

We are still waiting to get to see the pedi hematologist still.........................

9 comments:

Anonymous said...

I am sorry- this is unfair and scary...it makes you realize you are not invincible. You are so strong and you will make it through, keep up the good work!

Pia (Noah's mom) said...

I don't know why that posted as anonymous, whoops- it's me ( Pia) Noah's mom...sorry- but seriously hang in there...

Fynn, Corinne & Lucas said...

What an awful lot to take in - my heart goes out to you. Hang in there, try and stay positive!

Sandy said...

So overwhelming, I'm sure. Take a deep breath and know that it will get better. It always does.

Erin said...

Thanks ladies, I am trying to take it one step at a time but it is hard because not all of it is in my control

Sarah said...

Sweetie, I know exactly what you're going through. We went through it last year at this time and we'll be with a hi-risk ob next time too. It is incredibly tough. It's just so much to digest. You will get through this. Sean is a beautiful, happy little boy. Keep your chin up!

Sarah said...

Ah, and like you said, it's out of your control. Sometimes that's tougher, but in the end that usually makes me somewhat calmer. Like, if I can't change it, then I can't fret over it. It is what it is. Again, hang in there kiddo!

Erin said...

Thanks it is just so overwhelming and unfair I can't control everything. I just want to make sure we are doing everything we can to help him and others going through the same situation

Christine said...

Hi Erin,
I can't imagine how tough it would be to digest all of the new information you have received in such a short time.
Your such a positive woman and a great Mom.
Hang in there.