So sorry I didn't update earlier, our weekend was crazy. After going to our appointment at 8 AM on Saturday after a 10 min car ride took almost an hour because of all of the snow and the lack of plowing so early. It took us an hour to get there, luckily I was smart and left early so I had enough time.
Before we left we had to put eye drops in Sean's eyes to dilate them, so I had to remember to bring the stroller because he wouldn't be able to walk very well and with all of the snow on the ground I didn't want him to fall.
So we arrived around 7:55 and I open Sean's door and he goes "mommy I don't walk in that, it is dirty". He has OCD and Sensory Issues and thinks snow is dirty and doesn't want to touch it and if it gets on him he screams and screams until it comes off or melts. (we are working on that, total different topic and post- Lets just say he had a meltdown because snow got on his boots earlier in the week and snow has been a nightmare since)
So I put him in the stroller and try to plow through the snow on the ground that has not been plowed and got in safely with not to much crying.
We got upstairs and waited our turn. We finally got called around 8:30 the nurse brought us back and started to show Sean some pictures on the screen and he didn't really want anything to do with what was going on. He didn't want to sit in the chair, stand on the chair, or be any where near the chair. He wobbled out of the room (he had a hard time walking from the dilated eyes)
She said lets go in the kids play room and see if we can do a few more tests. So we went to the play room and she put these funny glasses on Sean (I think 3-D) and he had to grab at the animals that were jumping out at him. Not sure if he understood how to do that? Then we went to a big bug and he immediately grabbed at the wings (like he was suppose to) so I was happy.
The nurse than told me that the doctor is running behind and is not even in the office yet but on her way and with the snow she will probably be running behind about an hour. So we put in the movie Duck Tales (cute but Sean was not that interested)
We watched the movie and than two dirty diapers later it was finally our turn. We went back in the room with the scary chair that Sean climbed into like a big boy. The doctor put the animals back on the screen and other objects. Sean started to name them off like hand, duck, cake, phone, etc. She said that he is doing good, his eyes are still the same as they were last time so they are not worse but not better.
She told us to keep an eye on him and his eyes because he is near sided, she also said she wants to wait a few more months and see if they get better. But if not we will need to do glasses and a patch but right now she wants to see if his eyes will correct themselves. That is great news but still something I have to worry about.
The worrying will never end:)
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8 comments:
Hi Erin,
That's GREAT news!!! Farsightedness is pretty much the rule for all children until the age of three or fourish (as our opthamoligist has said) and they eventually grown "into their eyes" and the farsightedness corrects itself so let's keep our fingers crossed that that is what the scenario is with Sean ;) The 3D glasses are to test binocular vision and if he could see the wings on the bug then thats awesome!! YAY great news you guys!
Erin-can I email you a question re: ocd? I could be -as usual, over worrying. but Gabi tends to be quite "particular" with things and I don't know if that's normal.. if you don't mind can you message me with your email address? ( i had it before but i'm not sure where it is sorry)
Thanks for the update. I know the worrying never stops.
Hope your weekend was good crazy!!!
Wow! Good visit, overall, he's doing fine. Try not to worry too much about the glasses. I speak from four more years of experience with a child who'd had a stroke. Looking back, I wish I hadn't made myself sick with worry about what could happen to him. In this case, whether or not you worry will have no effect on the outcome. I know, it's easy for me to say not to worry, but trust me, you just want to put all your energies into the great stuff Sean is doing, enjoy how cute he is try not to look too far down the road. I don't mean to sound like Oprah or anything, BTW. :)
Glasses can be a good thing - esp if it helps him. He have less fear and anticipation of things he sees more clearly - avoiding meltdowns you think are sensory (well vision is a sense!). Ellen gives good advise.
Barbara
Appts just stink. They take forever and we still worry (even when they tell us 'just to watch it for now'!!!!
Thanks for the prayers. Please keep it up! I'm so worried.
I linked to you on my blog, let me know if thats not ok & I'll remove you.
Hi, Erin. I wasn't sure how else to contact you besides leaving a message here. I wanted to say thank you so much for taking the time to vote for Audrey yesterday, especially when you have so much else to think about... I was really touched by your Thanksgiving post. Sean is such a beautiful little boy, and it's wonderful that you two have each other. Hope you have a blessed Christmas. ~Jeni
Sounds like a very positive update. I agree take it day by day and try not to borrow trouble. I also know that it's easier said than done. Enjoy the holidays with your beautiful little boy.
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