I just wanted to say what I was thankful for.
I am thankful for many things in my life. This year has been a rough and emotional year. It started out with a bang and than we found out Sean suffered an in utero stroke, and once we were able to start to breathe again we found out that there is a whole in his brain, okay starting to breathe again and than we found out he is having seizures.
He has been through so much already being 7 weeks premature, having to go through tons of stuff after he came out but when we found out about the stroke he had been through a lot before he came out.
He is truly my hero and a survivor on many levels. I am thankful for every inch, kick, bite, kiss, hug, crying, temper tantrum, jumping, hitting, laughing, giggling, grinning, frowning, serious, sad, excited, overwhelmed, melt down, smiling, singing, humming, dancing, happy, mad, loving, caring, talking, running, screaming, learning, living, loving part of Sean...etc I think you get the idea. I love everything about him and thankful for everything he is. I am also thankful for my caring husband and all of the help and support he gives to me and to Sean.
No label that he has been givin- sensory issues, cerebral palsy, stroke, epilepsy, or medical diagnosis he has been giving is going to change any of it. I love him more and more every day.... and of course I am thankful for everything else in my life.
He has come a long way and will continue to succeed with the help of everyone around me and all of his therapies and therapists. PT, OT, Aquatic OT, SPT, DT.
Above is when he was first born and till now this is a true survivor and my hero.
15 comments:
Oh, he is just too cute. That first year after we had Max (had a stroke at birth, we knew the day after he was born because he was having seizures) really was THE hardest year of my life. Sean will continue to amaze you. And you will emerge from this first year stronger than ever.
Oh Erin that was a great post I am seriously crying..all of what you said is so true you are both such strong caring individuals. We are thankful to have you as our blogger friends :) I hope you had a great thanksgiving.
Take care.
Christine and Gabi
What a great post. I love reading your words. He is such a handsome guy!!!
hi...you just posted on my blog - weren't we on an FF buddy group?? i think so.....
Sean is an adorable little boy. His smile is so precious. I had no idea that babies could have a stroke inutero and survive. I'm off to read your other blog to learn more.
oh my gosh, what a beautiful post!
Thanks ladies. It was a great holiday!
Thanks for the comment on my blog. Your story is amazing, and your little man is adorable! If you don't mind, I may be checking back on a semi-regular basis. :)
hi,and thanks for stopping by! you have such a beautiful boy! i loved reading your story, thanks for sharing! so ispiring!
okay, your letter...how about an L?
Thank you for stopping by my blog earlier today. Your son is adorable and is an inspiration. You have so much to be thankful for. Thank you for sharing your story.
What a cutie!!! No matter the label or dignosis, he is your son and I know you love him. What a sweet smile!!!
~Elyse~
What a beautiful tribute to your adorable son! I love that you call him your hero, and I can definitely see why!
Thanks ladies
What you wrote was incredibly beautiful and so true! I couldn't love Charli more if I tried. She is such an incredible gift and I love her more every second of every day. We haven't been given really any information about her stroke as to when or how it happened. (before today that is..the neuro is now say ing it was her pulmonary hemorrhage that caused it, and I disagree with that) We are in the process of getting an appointment with CHOP to try and get some more answers and to have her completely checked out to try and rule out recurrences. Thank you for reading my blog, and I thank you for sharing your experiences, and how amazing your son is! I look forward to hearing more about him!
Karen
Beautiful post. He's an amazing guy for sure.
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