So I just read Sarah's blog and it really fired me up. I was already fired up about the meeting with the school this Wednesday night about Sean already but after reading what she went through brought my biggest fears to reality.
I work, Patrick works I just don't know how working parents can do it. We both work Mon-Friday, no time to start late, end early it just doesn't work like that.
Sean did not pick to be special or require special care but the fact is he NEEDS it. My SIL used to be a special ed teacher and she got us a copy of what they should be able to do at a certain age for that district and it is so black and white. It doesn't matter if you can do something even if it is the wrong way of doing it or you only use one side of your body to do it they mark you off as being able to do it.
That is a bunch of CRAP. How can my child go from receiving 5 therapies a week to the limited 60 visits we get privately through our insurance. And if he qualifies for services through the school they are only open 4 days a week for 2.5 hours. I guess I will find out all of the rest of the details on Wednesday night but I feel it is going to be a long hard tough battle. A battle I am not willing to lose but what can one do if they have to work five days a week....more to come on Wednesday night.