So I just read Sarah's blog and it really fired me up. I was already fired up about the meeting with the school this Wednesday night about Sean already but after reading what she went through brought my biggest fears to reality.
I work, Patrick works I just don't know how working parents can do it. We both work Mon-Friday, no time to start late, end early it just doesn't work like that.
Sean did not pick to be special or require special care but the fact is he NEEDS it. My SIL used to be a special ed teacher and she got us a copy of what they should be able to do at a certain age for that district and it is so black and white. It doesn't matter if you can do something even if it is the wrong way of doing it or you only use one side of your body to do it they mark you off as being able to do it.
That is a bunch of CRAP. How can my child go from receiving 5 therapies a week to the limited 60 visits we get privately through our insurance. And if he qualifies for services through the school they are only open 4 days a week for 2.5 hours. I guess I will find out all of the rest of the details on Wednesday night but I feel it is going to be a long hard tough battle. A battle I am not willing to lose but what can one do if they have to work five days a week....more to come on Wednesday night.
4 comments:
Oh, i'm not sure if i added it to my blog post or not, but i think we persuaded the school system to let Avery just attend twice a week (instead of the 4 days a week for the stupid 2.5 hours each day). Ryan will have one day off a week, and I will have to go to a 4-day 10-hour work week to have the other day off to take her to school. The other three days not spent at preschool/home with us will be at daycare from 8-5 while we're at work. Sadly, i think this is our ONLY option...and I'm praying my company allows me to do it! but maybe it's an option for you guys and your school system?
Ugh, Erin...this whole thing makes me upset for you guys! One of the biggest (if not only) reasons I am a stay-at-home Mom is because of Leah's schedule. We could definitly use for me to work, but I just don't know how to get her to therapies and work with her and work! I think you guys are amazing for working everyday and having the time, and more importantly the energy to work with Sean! You are very special people to be able to do that! I know, just like Sarah, you guys will figure it out. It just sucks that it has to be such a battle!
Let's get together soon, even if it's just for coffee and to talk. When are you available?
I am SO scared for when Meghan starts school. Right now, we have an uphill battle trying to get Meghan OT. she has 2 a week from the hospital, and none from our early intervention unit.
OT is pretty much right up there below feeding therapy. I'm in the process of trying to not be slipped through the cracks. Everyones agreeing with me except EI. boo.
Thanks ladies today is the BIG day or should I say BIG night. FX
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