I know I will never know everything but I am sick of learning something to learn another unknown. I just want to find out what it is, what we can do, what we need to look for, and what does it mean.
It seems like a easy four questions or at least one would think. But in reality they are not. We got to see the pedi neurologist but have uncover more unknowns and now need to see a pedi hematologist/oncologist to check to see why his protein c and protein s levels are low.
Trying to find out what that means online is even more of a scary thing then the unknown.
We also started the seizure medication today this morning he tool 1 ml and tonight he will get another 1 ml. We have to do 1 ml 2 x day for 3 days and then 2 ml 2 x a day for 3 days and then 3 ml 2 x a day for until well unknown at the moment.
This is an emotional rideI never thought I or us would be on but it only makes me remember to never ever take for granted anything in life to live each day to my best and tell everyone what they mean to me daily.
I just need to stop and enjoy Sean and Patrick and the spring that is suppose to be here. But wait we are in Chicago and it is suppose to SNOW tonight!
I did the March of Dimes- March for Babies yesterday and I raised over $1,000 dollars this year. Sean did not walk with us this year since it was 39 degrees. We walked 3 miles and I felt really good and proud of my team. We almost raised $3,000 dollars. Every dollar counts.